Pump Journeys
Pump Journeys PDF Print E-mail

Here we will list stories of personal experiences from people all over Scotland about trying to get a pump.  Some have succeeded and unforunately some not.  If you have a story we can publish This e-mail address is being protected from spambots. You need JavaScript enabled to view it  with us, it can be anonymous if you prefer.

Diabetes UK Scotland have recently produced a booklet Pumps - A New Lease for Life. This is a booklet of narratives sent in to Diabetes UK Scotland and iPAG about stories trying to get a pump in Scotland.  The online version is available here

Hard copies are available from Diabetes UK Scotland 

insulin_pumps_a_new_lease_for_life

Diabetes UK Scotland
The Venlaw
349 Bath Street
Glasgow
G2 4AA

Telephone 0141 245 6380 
Careline Scotland 0845 120 2960
Fax 0141 248 2107
Email  This e-mail address is being protected from spambots. You need JavaScript enabled to view it

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Eventually in 2008 in Greater Glasgow and Clyde PDF Print E-mail
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2006 and 52 years of diabetes, HbA1C the 8s and 9s, night-time hypos every night, feeling tired, fed up and ill. Frequent liaison with my DSN and consultant did not do much. One day my DSN suggested an insulin pump. I had been offered a pump in the 1970s, but as a 20 something did not feel inclined to walk about with a big blue brick tied round my waist, so declined – probably just as well because they didn’t work that well then.

Before Pump

With Pump

  • Night-time hypo every night for as long as I can remember
  • Waking up not knowing who I was, where I was or when it was
  • Hospital admissions
  • Lots of hypos during the day as well
  • Feeling like I had a permanent hangover – felt ill all the time
  • Tired – no energy
  • Fuzzy brain
  • 4-6 injections a day – injection sites in very poor condition (70,000 injections over a life-time of diabetes)
  • Drank at least one six-pack of Lucozade every week sometimes more
  • Overweight
  • At least monthly visits to my GP
  • Clinic visits every 2-3 months
  • Regular phone calls to Diabetes Specialist Nurse
  • Depression
  • Regular psychiatrist appointments
  • Fortnightly psychologist appointments
  • Appointments with GP practice CPN
  • Anti-depressants
  • Quality of life – total rubbish
  • Not one night-time hypo since I started on the pump
  • About two GP visits in two years
  • Clinic visits will now be six monthly
  • Limited input from Diabetes nurses
  • Insulin dose has reduced to about 50% of previous dose
  • Feel clear headed and ready for anything
  • Feel good – lots of energy
  • Lost weight – about 7 Kg (ov er a stone)
  • Depression gone
  • Discharged from psychiatrist, psychologist
  • No more antidepressants
  • Hardly need to take Lucozade at all
  • Never late for work because of hypos
  • HbA1C – 6.7 – Yes!
  • Quality of life – great!

The journey to an insulin pump was very arduous, particularly the pre-pump “clinical assessment” where the pump team tried to prove that I didn’t need a pump – making me very much more ill. I was told I was unsuitable for a pump because I have an irregular lifestyle, exercise at the gym, have a stressful life and was on a relatively low dose of insulin – these tend to be factors that suggest that an insulin pump would help diabetes control. Pump consultant said “I don’t know why you want one of these – I wouldn’t have one in a million years”. I hope I have proved the pump team wrong – but still live in fear of them taking the pump back. I think the NHS has well and truly got its money back …