iPAG Scotland - Our Mission Statement

We aim to improve the lives of people with diabetes by increasing awareness throughout Scotland and the UK of the benefits of insulin pump therapy and new technology, and to actively campaign for equal access to quality assured NHS pump service provision for all those who would benefit from this treatment option.

Read our full mission statement, aims and objectives..

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Think Like a Pancreas 2nd Edition - Gary Scheiner

Think Like a Pancreas 2nd Edition - Gary Scheiner

Completely revised and updated, this is the essential guide to managing day-to-day issues for diabetics who use insulin. Dozens of books offer advice on managing diabetes, but few focus specifically on the day-to-day issues facing those who use insulin. In this fully updated and revised second edition, Gary Scheiner, a...

10 Aug 2012

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Pumping Insulin, 5th Edition - John Walsh

Pumping Insulin, 5th Edition - John Walsh

Pumping Insulin, New - 5th Edition Everything You Need For Success With An Insulin Pump Pumping Insulin is a complete guide for achieving excellent control on a smart insulin pump. Pump users and health professionals will benefit from comprehensive, easy-to-use information, focused on the latest features in today's insulin pumps and CGMs. Get...

10 Aug 2012

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Cellnovo Specifications

Cellnovo Specifications

Cellnovo pump management system We get asked a lot of questions about the Cellnovo pump which is due out later this year.  It is unsure when it will be available in Scotland, and may not be available in all health board areas. Here are some answers to the most frequently asked questions; The...

17 Jun 2012

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Scottish Government Official launch of pump targets -27th Febuary 2012

Scottish Government Official launch of pump targets -27th Febuary 2012

Scottish Government Official launch of pump targets -27th Febuary 2012 The government have committed to 909 adult pumps over 3 years, an increase of over 100 pumps per year. Why? Because the government have told health boards:  Reductions in hospital admissions: pumps are associated with improvements in glucose control which assists in the reduction...

26 Feb 2012

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Pumps per Health Board - Lastest figures from Scottish Diabetes Survey 2010

Pumps per Health Board - Lastest figures from Scottish Diabetes Survey 2010

  Scottish Diabetes Survey 2010 - Published 13th June 2010   Full survey HERE

13 Jun 2011

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First CGM-enabled, waterproof insulin pump system now approved in Europe

First CGM-enabled, waterproof insulin pump system now approved in Europe

Animas® Vibe™, the First Integrated Offering from Animas Corporation and Dexcom, Inc., Receives European CE Mark Approval Press release 2nd June 2011 WEST CHESTER, PA, June 2, 2011 /PRNewswire/ — Animas Corporation announced today the receipt of CE Mark approval for Animas® Vibe™, the first and only continuous glucose monitoring (CGM)-enabled insulin pump system...

02 Jun 2011

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Around U an all round success

Around U an all round success

Scores of young people take part in events around the UK Young people with diabetes across the UK have enjoyed four action packed days out sponsored by Bayer Diabetes Care. During the summer holidays more than 160 young people with diabetes between the ages of six and 16 took part in Bayer’s Around...

07 Sep 2011

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Are things improving?

Are things improving?

March 2011 As last year’s pump statistics are reviewed on the eve of the release of the Scottish Diabetes Survey 2010 and maybe even a new government, political pressure, and pump awareness campaigns, insulin pumps have never before received the understanding they are now.  Health Boards up and down the country...

19 Mar 2011

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Data of 10 years CSII treatment in children with type 1 diabetes

Data of 10 years CSII treatment in children with type 1 diabetes

At the 4th International Conference on Advanced Technologies and Treatments for Diabetes held in London, Febuary 2011 Dr Nataša Bratina gave a presentation on data of 10 years of CSII treatment in children with type 1 diabetes in Slovenia. She stated that starting CSII is a routine treatement plan.  Children attend University Children’s hospital in...

05 Mar 2011

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Access your health information - Now Live

Access your health information - Now Live

My Diabetes My Way's pilot project to see your health information is now live and are still looking for more patients to take part.  See here for more information.  They hope to improve what already seems like an excellent service even further around March making it more interactive. At present you...

15 Dec 2010

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JDRF Launch the One Campaign

JDRF Launch the One Campaign

We don't think people with type 1 diabetes are getting a fair deal so today we're launching the 1 Campaign to raise awareness of the condition. We want to make decision makers aware of the impact type 1 has on families to improve access to treatments and ultimately secure more money for research into...

18 Oct 2010

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Better control on a pump when used as first course of treatment

Better control on a pump when used as first course of treatment

A new study has found children who are diagnosed with type 1 diabetes before the age of six have better blood glucose control and fewer hypos if they start on a pump rather than multiple daily injections. Researchers from the University Hospital of Reims in France studied 66 children who had been...

31 Aug 2010

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Patients Want Pumps

Patients Want Pumps

Patients want pumps, says new report People with diabetes in Scotland want better access to a medical technology that can greatly increase their health and quality of life. Insulin pumps: a new lease for life brings together the stories of people with diabetes who have often struggled to get access to...

06 Jul 2010

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Yorkhill Children's Hospital - Media Statement release

Yorkhill Children's Hospital - Media Statement release

Some of Yorkhill's services may be reduced or stopped due to the reduction of nursing staff - this includes the pump service, and home and school visits for newly diagnosed children.  Around  20 children currently use Insulin Pump Therapy at Yorkhill, while those children will continue with this treatment there will...

02 Aug 2010

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HbA1c Standardisation

An important blood test that is measured at least once a year in each of the UK's 2.5 million patients with diabetes is undergoing a major change. Because glucose levels can vary throughout the day, and from day-to-day a test called glycated haemoglobin (HbA1c) has been used to give an indication of how high...

02 Aug 2010

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Response from the Royal College of Physicians of Edinburgh

Response from the Royal College of Physicians of Edinburgh to the Better Diabetes Care Consultation 22nd Aug 2009 SECTION 3.15 – PUMP THERAPY Issues to consider What further steps should be taken to increase the appropriate availability of insulin pumps? What support structures need to be in place to ensure...

22 Aug 2009

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slovenia_small_mapAt the 4th International Conference on Advanced Technologies and Treatments for Diabetes held in London, Febuary 2011 Dr Nataša Bratina gave a presentation on data of 10 years of CSII treatment in children with type 1 diabetes in Slovenia.

She stated that starting CSII is a routine treatement plan.  Children attend University Children’s hospital in Ljublijana up to the age of 25 years, unlike Glasgow when a newly diagnosed child over 12 years is referred and treated in adult services. All costs for CSII are covered by the National health insurance company. A 24/7 helpline is available.  The choice of pump therapy is a joint decision between the patient, their family and diabetes team. Each patient has 3 annual visits to the clinic when data is collected.  Since 2000 - 750 pumps started.  75% of children are now using pumps.

Findings:

·         HbA1c changes significantly. From 9.25 to 7.75 in 2009

·         Insulin requirement also changed over the years: in 2000, it was 0.76 while in 2009, it was 0.68

·         Acute severe complications in the whole group: 1.41 per 100 patient-years (DKA) and 0.73 per 100 patient-years (severe hypos)

·         Incidence rate of acute severe complications in CSII (Insulin Pump Therapy) was: 1.05 per 100 patient-years (DKA) and 0.65 per 100 patient-years (sever hypos)

Conclusion:

Analysis of 767 paediatric patients from a National childhood-onset diabetes registry demonstrated a significant and clinically meaningful decrease of HbA1c over a 10 years observation without an increase of severe DKA or severe hypos, possibly due to an extensive routine use of CSII

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The Herald

16 Mar 2011

A3160a1A TREATMENT that can transform the lives of patients with diabetes has been put on hold by Scotland’s largest health board amid the drive for spending cuts, according to consultants and patients.

Insiders say NHS Greater Glasgow and Clyde has suspen-ded its adult waiting list for insulin pumps – devices which reduce the need for frequent injections and allow people with severe forms of the condition to lead a more normal life.

The Scottish Government published a diabetes action plan last year, which said the pumps should be considered a mainstream therapy and promised to promote them to people who would benefit.

However, it appears some patients in Greater Glasgow and Clyde will be denied the option or have to wait years for treatment. Sufferers were expected to confront politicians about the issue at a Question Time style event in Edinburgh last night.

One Glasgow clinician told The Herald: “It is an absolute disgrace. The health board is playing a game of who blinks first with the Government. The Government has made it clear people should be given access to pump therapy. The board says it does not have the money.”

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Nanette Milne MSP puts down Motion for JDRF - more support needed - Have your MSP's supported it yet?

30/11/2010

JDRF recently met with Nanette Milne MSP, Conservative Member of the Scottish Parliament for North East Scotland. Nanette agreed to put down a Motion for JDRF in the Scottish Parliament in order to increase awareness and understanding about type 1 diabetes and particularly about the uptake of insulin pumps in Scotland.

Motions provide a formal mechanism for MSPs to raise issues in Holyrood and if selected from a ballot, can be debated as members business in the chamber. You can see the text of the motion here. If you live in Scotland, please get in contact with your MSP and ask them to sign Motion S3M-07505 Juvenile Diabetes Research Foundation and give their support to this issue.

So far the motion has been supported by 49 of our 129 MSP's- Sir Jamie McGrigor, John Lamont, Elizabeth Smith, Murdo Fraser, Mary Scanlon, Hugh O'Donnell, Bill Aitken, Angela Constance, Pauline McNeill, Karen Whitefield, Dr Richard Simpson, Joe FitzPatrick, Margaret Mitchell, Jackie Baillie, Mary Mulligan, Alison McInnes, Robin Harper, Hugh Henry, Ross Finnie, Cathy Peattie, Ken Macintosh, Rt Hon George Foulkes, Stuart McMillan, Gavin Brown, Robert Brown, Dr Bill Wilson, Dr Ian McKee, Bill Butler, Gil Paterson, Maureen Watt, Annabel Goldie, Linda Fabiani, Kenneth Gibson, Shirley-Anne Somerville, Jamie Hepburn, Jackson Carlaw, Rt Hon Jack McConnell, Bill Kidd, Patricia Ferguson, Bob Doris, Stewart Maxwell, Marlyn Glen, Rob Gibson, David Stewart, Rhoda Grant, Peter Peacock, Dave Thompson, Stewart Stevenson, Cathie Craigie

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For the first time pump usage has been included in the Scottish Diabetes Survey.  Below is a graph taken from the most recent survey 2009, published spring 2010, showing pump usage per Health Board.  To view the full survey please see here

scottish_diabetes_survey_2009_stats_graph

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euan1

iPAG would like to congratulate Euan on his recent accomplishment of running the 3k in Glasgow last month and thank him for kindly donating his sponsorship money to the group.

Euan age 12, who has had Type 1 diabetes since he was 22 months old has been hoping for an insulin pump to help him manage his diabetes for several years now after first learning about pumps at a Diabetes UK family weekend.  Earlier this year the family felt their hopes were dashed when they heard Yorkhill may be stopping their pump service due to staffing difficulties throughout the NHS.  

Feeling a pump was right for Euan, he, his family, friends and iPAG, wrote to the health board and government asking what was going on.  Euan's MSP Bill Butler knew what a difference a pump can make to a young person's life after helping another constituent get a pump on the NHS and was very happy to support Euan.  Last month Euan received the news he was waiting for, he is getting a pump!  

Euan is due to start on his pump on Tuesday 5th Oct, we wish Euan and his family well and look forward to hearing how it goes. Thanks Euan and good luck!

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A3160a1Thousands of people with Type 1 diabetes in the UK are missing out on cost effective NHS treatment.

A comprehensive new survey of all 152 PCTs in England undertaken and published by the Medical Technology Group (MTG), backed by national diabetes support groups INPUT, the Juvenile Diabetes Research Foundation (JDRF), clinicians and leading cross-party MPs, has exposed major inequities in care for patients with diabetes across England. The findings show that 17% of patients with type 1 diabetes in Blackburn with Darwen PCT benefit from insulin pump therapy, compared with only 0.4% in Luton, leaving tens of thousands of patients with type 1 diabetes without access to the right treatment from the NHS.

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After a campaign to improve services at Yorkhill we are pleased to hear a way forward has now been agreed and additional children will be put on pumps in the next four to six weeks.  We believe this is a good initial step for children with diabetes attending Yorkhill Children's Hospital, however the situation is not so good for Adult Services in Greater Glasgow and Clyde and more work needs done to see adult services follow suit.  Glasgow has a minimal number of its patients on insulin pump therapy compared to other health boards in Scotland. At present the waiting list for patients in Clyde in more than 15 years for a pump (based on their quota of one pump per year) 

evening_timesAs the news at Yorkhill breaks Rebekah makes the front page of the Evening Times.  

Mary Moody is chairwoman of the Insulin Pump Awareness Group Scotland which was set up to campaign for wider use of the equipment.

She said: “I personally use an insulin pump and have found that it has transformed my life after 54 years of struggling with injections – lost time from school, general poor health, frequent hospital and GP visits.

“Putting resource into insulin pumps now will save the NHS in the long term by reducing complications such as blindness, kidney failure and amputations.”

A spokesman for NHS Greater Glasgow and Clyde said: “Over the last few weeks we have been looking at our options to expand the diabetes service for children which includes increasing the number of patients on the insulin pump therapy service.

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