iPAG Scotland - Our Mission Statement

We aim to improve the lives of people with diabetes by increasing awareness throughout Scotland and the UK of the benefits of insulin pump therapy and new technology, and to actively campaign for equal access to quality assured NHS pump service provision for all those who would benefit from this treatment option.

Read our full mission statement, aims and objectives..

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Think Like a Pancreas 2nd Edition - Gary Scheiner

Think Like a Pancreas 2nd Edition - Gary Scheiner

Completely revised and updated, this is the essential guide to managing day-to-day issues for diabetics who use insulin. Dozens of books offer advice on managing diabetes, but few focus specifically on the day-to-day issues facing those who use insulin. In this fully updated and revised second edition, Gary Scheiner, a...

10 Aug 2012

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Pumping Insulin, 5th Edition - John Walsh

Pumping Insulin, 5th Edition - John Walsh

Pumping Insulin, New - 5th Edition Everything You Need For Success With An Insulin Pump Pumping Insulin is a complete guide for achieving excellent control on a smart insulin pump. Pump users and health professionals will benefit from comprehensive, easy-to-use information, focused on the latest features in today's insulin pumps and CGMs. Get...

10 Aug 2012

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Cellnovo Specifications

Cellnovo Specifications

Cellnovo pump management system We get asked a lot of questions about the Cellnovo pump which is due out later this year.  It is unsure when it will be available in Scotland, and may not be available in all health board areas. Here are some answers to the most frequently asked questions; The...

17 Jun 2012

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Scottish Government Official launch of pump targets -27th Febuary 2012

Scottish Government Official launch of pump targets -27th Febuary 2012

Scottish Government Official launch of pump targets -27th Febuary 2012 The government have committed to 909 adult pumps over 3 years, an increase of over 100 pumps per year. Why? Because the government have told health boards:  Reductions in hospital admissions: pumps are associated with improvements in glucose control which assists in the reduction...

26 Feb 2012

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Pumps per Health Board - Lastest figures from Scottish Diabetes Survey 2010

Pumps per Health Board - Lastest figures from Scottish Diabetes Survey 2010

  Scottish Diabetes Survey 2010 - Published 13th June 2010   Full survey HERE

13 Jun 2011

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First CGM-enabled, waterproof insulin pump system now approved in Europe

First CGM-enabled, waterproof insulin pump system now approved in Europe

Animas® Vibe™, the First Integrated Offering from Animas Corporation and Dexcom, Inc., Receives European CE Mark Approval Press release 2nd June 2011 WEST CHESTER, PA, June 2, 2011 /PRNewswire/ — Animas Corporation announced today the receipt of CE Mark approval for Animas® Vibe™, the first and only continuous glucose monitoring (CGM)-enabled insulin pump system...

02 Jun 2011

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Around U an all round success

Around U an all round success

Scores of young people take part in events around the UK Young people with diabetes across the UK have enjoyed four action packed days out sponsored by Bayer Diabetes Care. During the summer holidays more than 160 young people with diabetes between the ages of six and 16 took part in Bayer’s Around...

07 Sep 2011

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Are things improving?

Are things improving?

March 2011 As last year’s pump statistics are reviewed on the eve of the release of the Scottish Diabetes Survey 2010 and maybe even a new government, political pressure, and pump awareness campaigns, insulin pumps have never before received the understanding they are now.  Health Boards up and down the country...

19 Mar 2011

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Data of 10 years CSII treatment in children with type 1 diabetes

Data of 10 years CSII treatment in children with type 1 diabetes

At the 4th International Conference on Advanced Technologies and Treatments for Diabetes held in London, Febuary 2011 Dr Nataša Bratina gave a presentation on data of 10 years of CSII treatment in children with type 1 diabetes in Slovenia. She stated that starting CSII is a routine treatement plan.  Children attend University Children’s hospital in...

05 Mar 2011

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Access your health information - Now Live

Access your health information - Now Live

My Diabetes My Way's pilot project to see your health information is now live and are still looking for more patients to take part.  See here for more information.  They hope to improve what already seems like an excellent service even further around March making it more interactive. At present you...

15 Dec 2010

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JDRF Launch the One Campaign

JDRF Launch the One Campaign

We don't think people with type 1 diabetes are getting a fair deal so today we're launching the 1 Campaign to raise awareness of the condition. We want to make decision makers aware of the impact type 1 has on families to improve access to treatments and ultimately secure more money for research into...

18 Oct 2010

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Better control on a pump when used as first course of treatment

Better control on a pump when used as first course of treatment

A new study has found children who are diagnosed with type 1 diabetes before the age of six have better blood glucose control and fewer hypos if they start on a pump rather than multiple daily injections. Researchers from the University Hospital of Reims in France studied 66 children who had been...

31 Aug 2010

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Patients Want Pumps

Patients Want Pumps

Patients want pumps, says new report People with diabetes in Scotland want better access to a medical technology that can greatly increase their health and quality of life. Insulin pumps: a new lease for life brings together the stories of people with diabetes who have often struggled to get access to...

06 Jul 2010

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Yorkhill Children's Hospital - Media Statement release

Yorkhill Children's Hospital - Media Statement release

Some of Yorkhill's services may be reduced or stopped due to the reduction of nursing staff - this includes the pump service, and home and school visits for newly diagnosed children.  Around  20 children currently use Insulin Pump Therapy at Yorkhill, while those children will continue with this treatment there will...

02 Aug 2010

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HbA1c Standardisation

An important blood test that is measured at least once a year in each of the UK's 2.5 million patients with diabetes is undergoing a major change. Because glucose levels can vary throughout the day, and from day-to-day a test called glycated haemoglobin (HbA1c) has been used to give an indication of how high...

02 Aug 2010

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Response from the Royal College of Physicians of Edinburgh

Response from the Royal College of Physicians of Edinburgh to the Better Diabetes Care Consultation 22nd Aug 2009 SECTION 3.15 – PUMP THERAPY Issues to consider What further steps should be taken to increase the appropriate availability of insulin pumps? What support structures need to be in place to ensure...

22 Aug 2009

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Humza_Yousaf_MSPInsulin Pump Funding (Glasgow)

Humza Yousaf (Glasgow) (SNP): To ask the Scottish Executive what impact the recently announced additional funding for insulin pumps will have on Glasgow. (S4O-00868)

The Minister for Public Health (Michael Matheson): In addition to our substantial funding commitment, national guidance was issued to every national health service board in February setting out our ambition to dramatically increase pump provision for children and adults across Scotland. By the end of March 2013, insulin pump therapy will be made available to 25 per cent of children and teens with type 1 diabetes within NHS Greater Glasgow and Clyde. In addition, we expect to see a dramatic increase in the number of pumps for adults with type 1 diabetes over the next three years.

Humza Yousaf: I welcome the announcement by the Scottish Government of that extra funding. I note in the plans that were outlined by the chief executive of the NHS and reiterated by the minister that the increase in pump provision is not timetabled to begin until 2013-14. However, many people in Glasgow have been waiting several years for the local health board to increase provision from its current dismal rates, and a further wait will add to the difficulty of their situation. Are there any interim plans to start increasing the provision now in order to build up to that 2015 target?

Michael Matheson: We expect all boards, including NHS Greater Glasgow and Clyde, to take immediate action to start to increase the number of insulin pumps that are available to all age groups, including adults, but children and young people in particular. We have asked each health board, including NHS Greater Glasgow and Clyde, to provide us with a detailed action plan for how it intends to achieve that increase. We expect those plans to be submitted by all health boards shortly. We will continue to scrutinise those plans once they have been submitted to monitor the progress that has been made by individual boards towards achieving the increase that we want in the provision of insulin pumps. 

The member can be reassured that, given the clear commitment that the cabinet secretary has given on this matter, we will scrutinise closely the progress that boards are making on this matter. We expect immediate improvements to start to be made by boards in the coming year to ensure that what we see as the right level of availability of insulin pumps to young people in Scotland is achieved.

http://www.scottish.parliament.uk/parliamentarybusiness/28862.aspx?r=6941&i=63221&c=1300943

 

...

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NEWS

sg_news
Scottish Government Official launch of pump targets -27th Febuary 2012

The government have committed to 909 adult pumps over 3 years, an increase of over 100 pumps per year.

Why?

Because the government have told health boards: 

Reductions in hospital admissions: pumps are associated with improvements in glucose control which assists in the reduction of hypoglycaemic episodes. Hypoglycaemia is a major cause of emergency hospital admissions with substantial resource implications for paramedic and hospital services. 

Reductions in long term complications: there is strong evidence that shows poor glucosecontrol is associated with serious complications such eye disease, foot disease and kidney disease.

Quality of life: perhaps most importantly, pump users in Scotland consistently report that pumps are life transforming, significantly improving their quality of life.

Read the Chief Executives letter sent to all Health Boards setting out government targets

http://www.ipagscotland.org/images/pdf/cel2012_04.pdf

New treatment for diabetic kids

27/02/2012

All eligible under 18s with type 1 diabetes will now have access to life-changing insulin pumps under plans announced today.

The pumps are small medical devices that are attached to the individual's body and are programmed to administer the correct amount of insulin needed, removing the need for insulin injections and making the condition easier to manage.

Funding of at least £1 million will be provided to NHS Boards to help them deliver pumps to under 18s who need them, as well as tripling the amount of pumps available to all Scots.

Health Secretary Nicola Sturgeon made the announcement alongside five year old Daisy Slatter – the youngest person in Scotland to receive a pump. After years of multiple, daily insulin injections Daisy’s life has been dramatically improved by the medical device.

Ms Sturgeon said:

"Insulin pumps mean freedom from having multiple insulin jags a day – giving Scotland’s youngest diabetics a normal childhood.

"By the end of March 2013, this treatment will be made available to the 480 children and teens struggling with type 1 diabetes who could benefit from it.

“Over the next three years, NHS Boards will also increase the number of insulin pumps available to all Scots to 2,000, tripling the current amount.

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With Largest Ever Usability Trial of Insulin Pump Technology

Cellnovo Launches World First Mobile-Connected Diabetes Management System

cellnovo_pump_handse99711e
February 08, 2012, LONDON, UK/BARCELONA, SPAIN. Press Dispensary. Cellnovo today announced both the launch of the world's only mobile-connected diabetes management system, and the start of the largest usability trial ever to investigate insulin pump technology for patients with type 1 diabetes. The trial will also be the first in which all clinical data is captured remotely, in real-time; using the mobile data connectivity of the Cellnovo system.

Cellnovo's diabetes management system comprises an insulin pump that connects wirelessly to an intuitive 'app-based' touch-screen handset. The handset features an integral blood glucose monitor, an activity monitor and a mobile (GSM) data connection to a comprehensive web-based clinical management system. 


Cellnovo patients will be able to track and manage their diabetes; securely sharing all clinical information through the web so that they, their doctors, nurses and family members can ensure sustained and effective diabetic control. 

Principal Investigator of the Cellnovo usability trial, and world-leading authority on insulin pump therapy, Professor John Pickup of King's College London School of Medicine, remarked, "This clinical trial is not just the world's first with a mobile-connected insulin infusion system, it is also the first clinical trial in which the care team and patients can simultaneously observe and evaluate patient data in real-time, anywhere in the world." 

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John_Davis

Congratulations John Davis MBE

Everyone at iPAG would like to congraulate John for his MBE in the New Years Honours list.  Well deserved! 

John set up INPUT in 1998 to raise awareness of the benefits of insulin pump therapy. He was motivated to set up the group after struggling to cope with his own diabetes, until he started using a pump.  John and Lesley have given us support and advice which helped get iPAG up and ruinning too.

From the Daily Echo:

John Davis, 72, of Lymington, is made a MBE after heading a support group for people suffering from diabetes.

Mr Davis founded INPUT, which is campaigning for more diabetics to be prescribed with a sensor-controlled device that pumps insulin into the body.

INPUT estimates that only three per cent of the 300,000 people with Type 1 diabetes in the UK have pumps.

Mr Davis, who has used one of the devices since 1997, has recently retired from the group, having seen it grow hugely over the past 13 years.

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NHS_Scotland_Logo

Have you asked for a pump?

We would like to hear from you if you are currently on the waiting list for a pump or hear what happened if you enquired about a Pump in Greater Glasgow and Clyde Health Board area.  We are needing experiences and copies of any correspondance between you and the Health Board and/or government if possible.  

If you can help please contact us

We also require case studies... we would like to hear your story about getting your pump or trying to get a pump no matter where you are in Scotland too!

What to do if you have been refused a pump.

  • Keep notes of all appointment dates and records of what was said 

  • Write to your Health Board asking why the treatment is not being provided and keep copies of all correspondence 

  • Contact your MSP to request that they take up your case on your behalf. Also contact all elected representatives in your area to make them aware of the situation. Pass on copies of correspondence and notes of your case to your MSP
  • Contact iPAG so we can keep track of the areas where there are the most problems and get a better overall picture in Scotland

Further information here

Why pump? Listen to Sky's Steve Dixon's story

http://www.accu-chek.co.uk/gb/news/10sept09.html

There is clear evidence that good control of Type 1 diabetes from as early as possible gives better long term protection from complications, we all deserve the NHS's best care to prevent problems in the future.

Constant Glucose Monitor

Do you have NHS funding in Scotland, full or part time for sensors? If so we would like to hear from you.



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19th Sep 2011

Cellnovo Receives CE Mark Approval for World's First Mobile Diabetes Management System

Press Release

cellnovo_pump_handse99711eSeptember 19, 2011, London, UK. Press Dispensary. Cellnovo today announced that it has received CE Mark approval for the world’s first mobile diabetes management system, a significant milestone for the company and for people living with diabetes. 

“This is Cellnovo’s first step in a journey to bring this mobile diabetes management system to the world,” says William McKeon, Chief Executive Officer of Cellnovo. 

Cellnovo is a complete diabetes management system built around the principles of mobile, wireless technology. The system includes an insulin patch pump, a wireless, touch screen handset with a built-in blood glucose monitor, and an extendable applications set. 

“Cellnovo has created the first insulin pump that brings innovation and combines form with function, essential qualities in a device that patients have to interact with 24/7,” says Dr. Pratik Choudhary, Clinical Lecturer in Diabetes at King’s College London. 

Cellnovo’s ground breaking technology means that diabetes therapies can now be managed more easily, accurately and intuitively. The patch pump is the smallest and most precise ever developed, and the touch screen, wireless handset is instantly familiar to those who have used other mobile devices such as Apple’s iPhone. 

“Cellnovo has combined advanced mobile and medical technology which may create a paradigm shift in diabetes care,” says Irl B. Hirsch, Professor of Medicine, University of Washington, Seattle, USA. “For the multitude of patients who could benefit from pump therapy, Cellnovo could be a game-changer.” 

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